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Marilyn
08-21-2008, 03:49 AM
Sorry, haven't been on much. Hubby is in hospital. His heart is racing again, and they are trying to slow it down. I'm busy trying to take care of him and his some of his business as well as spend as much time as I can at my work. It would be easier if I worked in the same town where we live. The girls came down yesterday afternoon to visit him and I took them out to dinner. Hopefully he will be out by the weekend. They are trying to get his rate down to a level where he can come home then thin his blood so we can go to Houston in 3 weeks to see a doctor there. A new procdure has been developed that is 80% effective in eliminating this problem so that it will not happen again. Gotta run. Just wanted to check in.

Janet
08-21-2008, 06:18 AM
Thanks for letting us know Marilyn why you've been missing! I'll definitely say a prayer for your husband to get better soon and not have this happen any more. Of course, when you have time, I would like to know more about this. What brings it on...etc.

Please keep us informed and know he's in my prayers.

Gina
08-21-2008, 06:25 AM
Hi Marilyn, I thought you were away. Sorry to hear about what is going on with your husband. I will say a prayer and hope that the procedure you mentioned will help elimate the problem.. Good luck!

DianaB
08-21-2008, 08:12 AM
Tell your husband that he'll be in our thoughts and prayers. With everything that's going on don't forget to take care of Marilyn. You don't need both of you in the hospital.

gja1000
08-21-2008, 10:31 AM
I'm so sorry to hear this - do they have a name for what is causing his heart to beat so fast? or for the new procedure to correct it? I'm a nurse, so I am curious!

Shada
08-21-2008, 05:26 PM
Hope your husband is home soon....

Scary to go thru. My mother was in hospital last year for same thing.
I pray they can regulate his heartbeat very soon. Please keep us updated.. what is the new procedure? I would love to be able to share with my mom.

Prayers and thoughts are with you and your family.
[[HUGS]]

Marilyn
08-22-2008, 03:37 AM
Hi, just checking out the threads real quick. He's still in the hospital. He's down to 100 BPM, so they are making progress. Yaaaaa. What he has is called atrial fribullation (sp?). If it can be controlled with medication, he could live with it for years. There are many people who do, but he does not want to and the doctors don't want him to if there is another option. In the past they have converted him to a normal rhythm using drugs or electric shock.

This time they are trying to just get his beats down and leave him in A-fib so he can go to see the doctors in Houston. For them to map his heart and pinpoint the area where the problem is originating from, he has to be in A-fib. They will go in like they do for angioplasty only they will burn small spots on the heart to kill the nerves causing the fibrullation. If this is successful, he will be "cured" and will no longer need to take coumadin or any other drugs. I don't know the name of the procedure. It's been around for about 10 years, but only recently have they gotten the accuracy down to make it a recommended treatment.

He is very healthy other than being overweight, so he is a good candidate for the procedure. He's experienced A-fib 4 times now. Once in his 20's (triggered by an electric shock), then in his early 40's, last year and now.

Thank you for your prayers. It's always scary when something is going on with the heart. This house is too big for me to rattle around here all by myself. I need him home.

Dobie
08-22-2008, 05:43 AM
Marilyn, so sorry you are going through thig = I'll be thinking of you and your family.

gja1000
08-22-2008, 10:00 AM
Thanks for the update Marilyn!

My husband had the same thing, atrial fibrillation (a-fib) 3 years ago. They shocked his heart (actually he has an internal defibrillator due to his heart failure, so they just fired his own defibrillator) and it stopped the a-fib. Now he takes medication and it has been completely controlled. But you are right, medication does not work for everyone.

Interestingly, in May my husband developed atrial flutter which is almost the same as a-fib, but the heart rate does not go as high. Unfortunately, atrial flutter does not respond well to medication so he had the exact same procedure that you and your husband are going to Houston for. It is called a Cardiac Ablation. It is usually more successful in atrial flutter because the cells that are misfiring and causing the flutter are in the same pattern or in the same pathway - so all they have to do is burn out that pathway.

In a-fib, it is more difficult to determine (or map) where the cells are misfiring because they are misfiring in a more random pattern than in atrial flutter. You are absolutely correct in that the electrophysiology procedures have gotten much better in the past few years so that they can now better map the misfiring cells and then burn them (kill them) appropriately.

It is a very easy surgery. My husband got to come home in the afternoon after having it in the morning - but we live 10 minutes from the hospital so going from Houston to your hometown, that may not be the case. Also, he will likely have to take coumadin for a little while longer, maybe only 6 weeks, and then it will be stopped. But maybe not in your husband's case.

Sometimes in a-fib, they have to burn out so many cells to get it stopped, that the person has to have a pacemaker (and I can't remember, maybe your hubby already has one???) Anyway, even if he doesn't and he has to have one, that is OK too. It just means he won't be able to go through the metal detector at the airport (or other buildings). My husband says he gets "stripped searched" :) in lieu of the metal detector.

I hope everything goes well for your husband. Mine has very serious heart failure and he did great with the Cardiac Ablation - so I'm sure your hubby will come through with flying colors. Update us when you can.

Tink
08-22-2008, 08:22 PM
Good luck Marilyn, my prayers are with you both!

Marilyn
08-23-2008, 05:07 AM
Thanks for the update Marilyn!

My husband had the same thing, atrial fibrillation (a-fib) 3 years ago. They shocked his heart (actually he has an internal defibrillator due to his heart failure, so they just fired his own defibrillator) and it stopped the a-fib. Now he takes medication and it has been completely controlled. But you are right, medication does not work for everyone.

Interestingly, in May my husband developed atrial flutter which is almost the same as a-fib, but the heart rate does not go as high. Unfortunately, atrial flutter does not respond well to medication so he had the exact same procedure that you and your husband are going to Houston for. It is called a Cardiac Ablation. It is usually more successful in atrial flutter because the cells that are misfiring and causing the flutter are in the same pattern or in the same pathway - so all they have to do is burn out that pathway.

In a-fib, it is more difficult to determine (or map) where the cells are misfiring because they are misfiring in a more random pattern than in atrial flutter. You are absolutely correct in that the electrophysiology procedures have gotten much better in the past few years so that they can now better map the misfiring cells and then burn them (kill them) appropriately.

It is a very easy surgery. My husband got to come home in the afternoon after having it in the morning - but we live 10 minutes from the hospital so going from Houston to your hometown, that may not be the case. Also, he will likely have to take coumadin for a little while longer, maybe only 6 weeks, and then it will be stopped. But maybe not in your husband's case.

Sometimes in a-fib, they have to burn out so many cells to get it stopped, that the person has to have a pacemaker (and I can't remember, maybe your hubby already has one???) Anyway, even if he doesn't and he has to have one, that is OK too. It just means he won't be able to go through the metal detector at the airport (or other buildings). My husband says he gets "stripped searched" :) in lieu of the metal detector.

I hope everything goes well for your husband. Mine has very serious heart failure and he did great with the Cardiac Ablation - so I'm sure your hubby will come through with flying colors. Update us when you can.

Thank you so much for posting this!!!!! It's wonderful to hear from someone who has been through this. The drugs are still not working to bring his heart rate down. It was running 120 to 130 last night. We're supposed to go to Houston next week for the heart mapping and back later for the procedure. Hubby does not have a pacemaker now. Hopefully he won't need one later.

I just hate to see him going through this. He feels like he's in prison there at the hospital. He's getting lots of company, so that helps keep him distracted. And I'm taking our little yorkie, Zoe up to see him this morning. I had to give them her shot records and carry her up in a carrier, but since she's such a small dog, they are allowing her to visit. Yaaaaaa!!

gja1000, hope your hubby stays healthy for a very, very long time!! You and him will be in my prayers as well.

gja1000
08-23-2008, 06:49 AM
Hi Marilyn,
Glad I could help! My husband and I just saw his electrophysiology doctor yesterday and he is very pleased with my husband's progress. In fact, he told him his heart is doing so well now, that he needs to get more exercise!!!

Gary's heart only works at about 30% of what it should, so he is quite limited in what he can do. He had to take early retirement (at age 56) and he has to rest lots and lots. But I was very encouraged by the doctor's words yesterday. This is all to say that since your hubby's heart is much stronger - he should come though this so easy and he will feel so much better after the ablation is completed. We weren't meant to have a heart rate of 120-130 and it really makes you feel crummy. Also, staying in the hospital is really crummy too!!! I hope he gets out soon - yet, with this fast heart rate, it is MUCH better for him to be in the hospital with immediate care should something go amiss.

I also hope your hubby doesn't have to have a pacemaker - fingers/toes/legs crossed that he doesn't have to - but if he does, it is such a non-issue these days. Really the only issue is having the battery replaced every five years, and not being able to go through metal detectors. I'm very comforted that my husband has a pacemaker because I know that his heart rate can't get too low. His also has a defibrillator and sudden cardiac death is a major complication of heart failure (my husband's diagnosis), so I know if that happens, his defibrillator will fire and he will have a better chance of survival.

All this information is to say that modern technology is wonderful. These electrophysiology heart studies began in the early 1970's, when I first became a nurse. I remember our patients going down for these studies. We knew they had to stop patient's hearts and then start them back up, make their hearts go fast and then slow, make hearts beat irregularly, in order to figure out what to do and how to do it. This was hard for us nurses because we knew it was dangerous for the patients. But it had to be done in order to develop the fabulous technology that we have today. And of course, it was only done on the sickest patients for whom all other options had been exhausted. But that is why I don't get upset when they stop my husband's heart once a year, to test whether or not his defibrillator will fire properly. I feel very comforted to have been a part of the very early studies to develop the technology that is now helping my husband - and soon, yours too.

I am extremely confident that it will be very successful with your husband's problem!

Dobie
08-23-2008, 07:20 AM
Marilyn,

Do you mind me asking what type of symptoms he feels? Does it just feel like his heart is racing or does he also feel some other symptoms?

gja1000
08-23-2008, 07:44 AM
I'm sure Marilyn will reply to you also and symptoms can vary from person to person - but in general, people may have these symptoms: racing heart, lightheaded, dizzy, falling (from dizziness), fatigue to extreme tiredness, and like "something is wrong" - or a feeling of dread.

It also makes some people cough - seems silly, I know, but coughing evokes the valsalva maneuver which is the body's own way of correcting the problem. Of course, it doesn't work sometimes, but when this fast heart rate first starts, it makes some people cough which then may change the fast rhythm to a slower one.

Forgivenmom5
08-23-2008, 08:17 AM
sorry you and your husband are going through this. Hopefully the procedure will help him to feel better and able to enjoy life more.

Marilyn
08-24-2008, 05:04 AM
Gayle, they can't get his rate to stay below 120 to 130, so they are going to shock him on Monday. The first cardiologist, who is now on vacation, told us that they need him in a-fib in Houston to do the mapping. Now the cardiologists are saying that they need to get him out of a-fib, and it won't affect the mapping. Houston can still do it. Hubby very much wants a cure so he doen't have to live with the possiblility of this happening again at any time. Just think if this had happened in June right before Melissa's wedding. Do you know if bringing him out of a-fib will affect the accuracy of the mapping?

He's taking the max of the drugs and they can't give him any more. His blood pressure is dropping too low.

I'm always afraid when they shock him. A friend of our almost died. Her heart stopped and they almost didn't get it restarted. Hubby did fine when they shocked him last year. I'll be a basket case while they are doing it though. He's just got too much living left to do!! He has to be here for his grandkids. He just can't miss that!!!! And I need him, not good alone and girls are gone.

Dobie
08-24-2008, 05:22 AM
You and your husband will be in my thoughts tomorrow, I pray that all goes well.

Marilyn
08-24-2008, 09:08 AM
Thank you all for your very kind thoughts and prayers. I ran home for lunch after church and am taking our furkid, Zoe, back up to visit her daddy. I'm sure everything will be fine. Just something we have to get through.

I learned today that one of my dear friends is going through the same thing. She went to the emergency room last week with her rate at 230. They couldn't get it down and shocked her. She is going to Austin for, we think, the same procedure that hubby is to have. She's in her late 60's but you would never know it by looking at her. She looks maybe 48 to 50. Slim and very active. Guess it can happen to anyone.

Janet
08-24-2008, 10:05 AM
I'll be keeping you and your husband in my thoughs and prayers tomorrow Marilyn. Please keep us updated as you have.

Tink
08-24-2008, 02:40 PM
Good luck Marilyn, keep us posted. I'll keep you both in my prayers.

gja1000
08-24-2008, 06:23 PM
Gayle, they can't get his rate to stay below 120 to 130, so they are going to shock him on Monday. Do you know if bringing him out of a-fib will affect the accuracy of the mapping?

Marilyn,
There are a couple of ways of treating this - one way is to map the bad cells and then ablate them - but in persistent a-fib (like your husband has), they may ablate in areas that are known to cause a-fib to try to stop it. Almost all persistent atrial fibrillation signals come from the four pulmonary veins (which are in the heart) so they just ablate these area. In this case, you don't need to map first.

I don't know which they will use with your husband, but I would guess they will ablate in the areas known to cause a-fib since his a fib is persistent. The procedure may take several hours - so don't be concerned if it does.

Yes, I hate it when they deliberately put my husband's heart into a fatal arrythmia to see if his defibrillator will fire - but I've finally resolved myself to be happy that they check it periodically to be sure it is working properly - but it still makes me very nervous.

teri88
08-25-2008, 06:59 AM
Hi Marilyn, I haven't been on for a few days and just saw this thread. Praying that all goes well today.

DianaB
08-25-2008, 07:59 AM
You and your husband are in my thoughts and prayers today.

2tiredmom
08-25-2008, 02:51 PM
Marilyn,

Your husband is in my prayers also. I hope today went well for him.
God Bless you both.

Dobie
08-25-2008, 02:57 PM
Still thinking about you - make sure to take some time for you though, don't allow yourself to get run down during this difficult time!

Marilyn
08-26-2008, 03:45 AM
I typed a long post, telling you all about what happened yesterday, and for some reason when I tried to submit it, I was no longer logged in and my post vanished. I don't have time to type it all again.

Bottomline. Hubby was converted to a normal heart rhythm yesterday with electric shock and is coming home this afternoon.

I have to run now because I have to run out of town for work this morning and back to pick him up after lunch.

Decided to tell you, but try to keep it short. He's doing great!! but I had quite an experience at the hospital yesterday. They stuck me in a waiting room for two hours for a 30 minute procedure and would not give me any information on hubby other than confirm where he was. I almost passed out I got so upset. But the important thing is he is fine!!!!!!! Thirty minutes after they took him in, he was converted and when I was finally allowed to go in his room, he was smiling and waving at me. The doctor forgot to communicate with family. He was in ICU for the procedure and they delayed opening ICU for visiting hours because of something going on inside, so of course I thought something had gone wrong.

Chandra Amaya
08-26-2008, 07:57 AM
I'm sorry you are going through all this, but I am glad hubby is doing better. I sometimes think that doctors forget that they are a CUSTOMER SERVICE field......

Janet
08-26-2008, 10:21 AM
Glad everything worked out and he's coming home. I can understand how scary that would be, but it's behind you now. I'm sure he'll be glad to be home.

donna1990
08-26-2008, 12:02 PM
Just saw this today, so glad he is coming home. We will pray for both of you.

2tiredmom
08-26-2008, 03:31 PM
Marilyn,

Thats wonderful news. Hope he's on the mend and stays that way.
So sorry you had to go though all that at the Hospital though.
Waiting is always the worse part. I'll still keep you both in my prayers.
:thumbup:

Dobie
08-26-2008, 03:32 PM
I'm so happy to hear that the procedure went well!

Marilyn
08-27-2008, 03:12 AM
He's home!!!!! So glad and he is reeeeeallly glad. The house seems full again. He's felling good and ready to get some work done today. He's been worrying about how much this is costing us in lost income. Our insurance should cover most of the medical, but he's concerned about jobs he may have jeopardized by not getting back to people.

It will all work out for the good, I'm sure!!

We go to Houston tomorrow for him to see a specialist there about the ablation procedure. Not sure if it's just to visit or to do the mapping. We should find out more today.

Thank you all for you thoughts and prayers through this!!!! You are a wonderful group of ladies!!!!

DianaB
08-27-2008, 08:14 AM
I'm glad to hear that your husband is doing well. I bet that you were more than a little upset when you didn't hear anything for so long. I hope that everything goes well with your next appointment and that you get really good news.

Janet
08-27-2008, 08:55 AM
Glad he's home and feeling good. There's just no place like home is there! Hope all goes well tomorrow and with the procedure.

Chandra Amaya
08-27-2008, 09:16 PM
Welcome home to Marilyn's hubby!

Tink
08-27-2008, 09:24 PM
I'm so glad he's back home and doing better Marilyn!
My prayers will continue in hope that they can prevent this from happening again.

Marilyn
08-28-2008, 07:22 PM
We had a very good visit with the doctors in Houston. They say that he is a very good candidate for the procedure, and that he should respond well. He has to have some tests and imaging done before they actually do the procedure, and we elected to have this done here in our hometown. The insurance has not given authorization, yet, and had he done some of the tests and imaging today in Houston, there was a chance that without preauthorization, they could deny the claim. The testing and imaging could be very expensive.

He is scheduled for the procedure on September 10th. It will take 5 to 8 hours to complete, and he will have to stay for a day or two in the hospital.

Without the procedure, he would most likely have more incidents of A-fib on an increasing frequency until the condition no longer responds to treatment and becomes permanent, so this procedure offers up to a 90% chance of a future without incidents of A-fib.

We are praying for his comfort during the procedure, and of course, for a successful outcome.

gja1000
08-29-2008, 04:29 PM
Glad to hear of the great news! You are right to wait for authorization - the tests and electrophysiology studies are VERY expensive. Good luck with everything.

Marilyn
08-29-2008, 06:01 PM
Thank you everyone for your encouragement. We are so ready for our lives to get back to normal. We are very blessed to live in a time and place where treatment is available. 100 years ago, we probably would not have lived through some of the things that have happened in our lives. Just think if we lived where medical care on this level was not available. We are also blessed to have insurance to pay for this level of care. We have worked to get where we are, but it's a blessing that we live where and when we could take advantage of all of this.

We have so much to be thankful for!!!

Shada
08-30-2008, 07:23 AM
Happy your hubby is home, on the mend and looking forward to a procedure that will take care of this!!!