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I'd be getting VERY firm with the doc - this has gone on way too long. If you are seeing a new doc, even though he/she has your records, be sure to tell him/her how long this has been going on and all the things you have tried.
Ask him/her what could be causing it and then take each possibility and ask why he/she thinks it might/might not be that particular diagnosis. Make him/her talk to you about each possibility. Why might it be X, why not might it be X. What are the symptoms? What are the causes for EACH possibility. As they talk, you may think of something that might give them more ideas about what this is.
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 Gayle
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