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Hi Guys, I didn't post last night because I was afraid I would cry. I did break down and cry when my daughter called me. Gary just looked awful last night, but I'm relieved to say he's a little better today. He's still using his oxygen 24/7 and this is so NOT like him - at all. He seems to have little energy, but he looks a lot better today. I got him up and dressed and out of the house this morning for breakfast and while I could tell it was hard for him to get around and walk from the car to the restaurant, I knew he felt better. He looks even better this evening. His doctor is still out of town and she will be back next week. We have an appointment with her on Wednesday, but the nurses told us to go straight to the ER if he gets worse. I'm very relieved that his doctor will be back. It's not that I don't want another doctor, it's just that his case is so complicated and he can get in trouble, even with proper medical treatment in the hospital. His doctor knows all of that and I trust her. However, I certainly will not delay taking him to the ER if he gets worse.
We have his oxygen concentrator in the living room with a 50 foot hose on it so he can go to the kitchen, bathroom and bedroom without having to unhook his oxygen. We have portable bottles to use when we go out but they have to be changed every 2 hours, and the concentrator makes continuous oxygen, so that is better for at home.
I'm so glad that tomorrow is Friday!!!!!
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 Gayle
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